Sienna's
FLOWER GARDEN
Plant a flower and help us find a cure for Sienna Otto and others who suffer from F.O.P.
If we raise $1 million, we can fund a clinical trial for an effective treatment to stop
the progression of F.O.P., and continue to work towards a cure. With your help,
this may be only a few years away. Watch the video to get inspired.
DONATE NOW TO PLANT A FLOWER
X
X
$117,535 raised
$882,465 to go!
PLANT A FLOWER

Why should I donate?

The team of brilliant researchers at the University of Pennsylvania School of Medicine, working with Dr. Frederick Kaplan at the FOP Research Lab, are very close to finding effective treatments and ultimately a cure for F.O.P. This is not something that is just curable "someday" or "in our lifetime." This is literally just a few years away, and your support could be the funds that push the team over the edge to win this battle.

Where does the money go?

100% of the money raised from Sienna's Flower Garden will go to the International F.O.P. Association (IFOPA) to fund the team of researchers at Penn Medicine and are restricted to fund research, in honor of Sienna Otto, towards effective treatments and a cure.

The IFOPA is a registered 501(c)(3) charitable organization.






Your initials can appear on this flower.
Type them here:

All donations go directly to the IFOPA, and are tax deductible. Payments are processed by paypal

You are about to plant a
Daisy
$5 - $24

Flower Key:

daisy

$5 – $24

sweet pea

$25 – $99

poppy

$100 – $999

sunflower

$1000+

SIENNA'S STORY
Sienna Otto is a dynamic two-year old with a passion for flowers, swings, swimming, animals, Tex-Mex and Mott's Applesauce Pouches. She has a great sense of humor and has been known to spend entire doctors' appointments making raspberry noises (which is a great help when so many of her appointments have been so serious). She has a very high energy level and until her diagnosis, we had always encouraged an active lifestyle.

Learn more about Sienna at thesiennafoundation.org.





DONATE NOW TO PLANT A FLOWER
Sienna was diagnosed with F.O.P. on May 30, 2012, just a month after her second birthday. F.O.P. is an extremely rare and debilitating medical condition where bone forms in muscles and other soft tissues of the body. During a flare-up (characterized by large swellings), extra bone can form across the joints, restricting movement. Sienna was born with the classic malformation of the big toe and despite seeing a team of orthopedic foot experts in Dallas since birth, she was not diagnosed until she went through several months of flare-ups starting at 20 months.


DONATE NOW TO PLANT A FLOWER



DONATE NOW TO PLANT A FLOWER



DONATE NOW TO PLANT A FLOWER

ABOUT F.O.P.

  • F.O.P. is an abbreviation for Fibrodysplasia Ossificans Progressiva.
  • F.O.P. is an extremely rare and debilitating medical condition where bone forms in muscles and other soft tissues of the body.
  • A variation of F.O.P. called Heterotopic Ossification (HO) strikes nearly 65% of wounded military personnel and 10% of orthopedic surgery patients and is triggered by severe injuries.
  • During a flare-up (characterized by large swellings), extra bone can form across the joints, restricting movement.
  • F.O.P. is a progressive disease and currently there is no cure.
  • It has no ethnic, racial or gender pattern.
  • It does not affect a person's intelligence.
  • F.O.P. affects approximately 1 in 2 million people worldwide.
  • There are approximately 700 confirmed cases across the globe from a statistical estimate of 2,500.
  • There are nearly 200 confirmed cases within the United States.
  • Malformed big toes (see photo) are an important early sign of F.O.P. that most doctors overlook. Read more about this here.

To learn more about F.O.P., visit the International F.O.P. Association's website

SPREAD THE WORD

The only way we can raise the money we need to fund a clinical trial for the treatment and eventual cure for F.O.P. is with your help. Plant a flower, and then use your social skills for good. If 100 people buy a $5 flower, we'll raise $500. But if those 100 people got 100 of their friends to do the same, we'd raise $50,500. We could raise well over a million dollars with just three degrees of sharing. Flower by flower, we will raise the million dollars we need to ensure Sienna has the bright future she deserves.

Like The Sienna Foundation on Facebook for
updates on Sienna and the fundraising progress.

Do you have the means to help us get the word out even more?
Please email us at info@TheSiennaFoundation.org
For donation questions, contact us at accounting@ifopa.org